‘超声技术说,‘你的乳房绝对是多么混乱。’我只能想到,“这不好。”:年轻妈妈分享了三重阴​​性乳腺癌诊断的旅程

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“与我妈妈的交谈,一个breast cancer survivor,,,,at Christmas 2020.

我:‘嘿,妈妈,你还记得布雷安吗?我的老朋友从一天开始?我最近在想她,看着她。她只是用一些称为三重阴性乳腺癌的东西进行了一些非常激烈的治疗和手术。我谷歌搜索了它,这是这种非常侵略性的癌症,没有针对性的治疗选择,因为癌症测试对激素受体进行阴性,激素疗法不起作用。它更有可能传播,并且复发率很高。’

Mom: ‘That’s awful. She’s so young. I’ll keep her in my prayers. I haven’t heard of TNBC either. It must be pretty rare, especially if I just got throughbreast cancerand it was never mentioned. I didn’t even know there was more than one type of breast cancer.’

在树林里的家庭照片
Courtesy of Jayne Caron
在树林里的家庭照片
Courtesy of Jayne Caron

我清晰地记得那一天我发现的东西erious was wrong with my health. It was a chilly morning in February. My husband had just gone off to work and the kids were at my in-laws. I made my way into the city to meet with a lactation consultant. I had called for an appointment with my OBGYN the week before and mentioned I had seen some blood. Having just finished breastfeeding my baby girl a month prior, the receptionist assumed this would be a lactation-related appointment, and did not give me an urgent appointment spot. With this in mind, I was confident the symptoms were aclogged duct,,,,and perhaps an abscess from mastitis, and I’d be given some antibiotics and sent on my merry way.

LC检查了我的乳房,当我向她展示这是深红色而不是表达牛奶时,我似乎很担心,我向她展示了我乳房上的硬化,我认为这是堵塞的管道。她迅速离开了房间,带着一位医生回来了,我给了我乳房检查。“不要惊慌,”医生检查我后说,‘但是这种出血从来都不是正常的。我指你乳房外科医生需要您尽快进行成像。’我感到震惊。我知道我有团块,但是夏天我只是乳房X线照片,在秋天有身体上的乳房X线照片,而且医疗专业人员都不关心我一直提到的肿块和颠簸(以及经常出现的乳腺炎)。

You see, the problem with large and dense breasts is the standard ‘lay back on a table examination’ isn’t effective and mammograms don’t always pick up tumors in dense breasts. My OB couldn’t even feel the lumps until I showed her by sitting up and leaning forward. All I know is no antibiotics were given, and the serious look on their faces as I cracked jokes and tried to keep things lighthearted still haunts me.

wife in the hospital
Courtesy of Jayne Caron

The following week I went for a mammogram and ultrasound. As I waited to be called in, I posted a photo reminding people to still get mammograms even in the pandemic. I was still trying to keep things lighthearted. My mom had just gone through breast cancer a year prior to when my daughter was born. She had a double mastectomy with reconstruction and is able to take oral meds and completely avoid chemotherapy or radiation. It was a tough recovery for her, but she is thriving now. Surely, being only 35, I could get through it too.

我有乳房X线照片,并放下了与超声技术的闲聊,因为她让我准备好了。由于我的另一个乳房疼痛,我在夏天认识她的整个夏天都认识了她。刚满35岁的保险批准了我的两种乳房的成像,但是我只得到了非癌性乳房的超声检查,因为那是我痛苦的乳房。

在花园里摆姿势的家庭
Courtesy of Jayne Caron

It’s important to note here that women with dense breast tissue should always have ultrasounds of both breasts following mammograms. This should be the standard of care. If you are not offered an ultrasound, I urge you to request one.

科技和我聊了20分钟what a crazy year 2020 had been, but what I remember most from that conversation is her telling me what an absolute mess my breast was. The head of breast imaging came in to take over the ultrasound and recommended biopsies of three different areas of my breast and a swollen lymph node under the arm. I would have to make an appointment at the office where they perform the biopsies and surgeries, and they were booked almost two weeks out. The thought in my head at that time was, ‘My mom didn’t have that many suspicious areas… this isn’t good.’

mom with cancer at the doctor's
Courtesy of Jayne Caron

又又一周了,直到我终于可以与乳房外科医生见面。我一个人去任命,以为这只是一场快速的咨询,直到我可以完成活检。但是,她能够对她办公室中最大的可疑区域进行活检,并告诉我下周的结果将会回来。有人告诉我,这可能是癌症,在大流行期间,一个陌生人的手在我的乳房中握住一根针。那天下午,她送我进行基因测试,然后我遇到了我的姐姐度过了一个急需的购物日期,以使我摆脱一切。

It was our first time really doing mindless shopping since the pandemic started. We went to some home goods stores and ended our night at TJ Maxx, where I bought a scalp shampoo massager, a new shower cap, and some hair ties. It clearly hadn’t crossed my mind that this might be the type of cancer that requires chemotherapy. I shake my head in disbelief every time I look at that darn shower cap now.

It was late afternoon when I got an email from the lab that my results were ready. I had signed up to get results on bloodwork directly from the back when we were going through infertility treatments. We didn’t know my pathology report would also be done by them and I’d have the results of my biopsy available before I could hear from the surgeon. This wasn’t the way it was supposed to work.

妻子和丈夫自拍照
Courtesy of Jayne Caron

I was finishing up work (from home) for the day and my husband was heading to pick the kids up from his parents’ house. I called him immediately and asked him to stay at his parents’ house with the kids. I knew getting these results at home by myself was something no one should have to go through, but I didn’t want my children to have to see me break down and I simply could not wait until the doctor’s office opened the next day. Our 4-year-old had been picking up on too much lately with all the stress the year had brought, and I couldn’t bear the thought of him seeing me upset, nor did I think I could put on a brave face through dinner and bedtime.

All too familiar with lab reports, I opened them immediately and scrolled down to the diagnosis, already knowing in my heart it was cancer. ‘Invasive Ductal Carcinoma’ it read, but it was followed by a lot of NEGATIVE testing and for a moment I had hope this was a good thing. I dialed the breast surgeon’s office and explained my situation to the after-hours answering service, asking if ANY doctor could call me back. I was told she’d relay the message but they did not usually call back after hours in situations like this. I never heard back from anyone.

I made some phone calls to two friends in the medical field and had to put one of them in the terrible position of telling me I had breast cancer, and the负测试were Triple-Negative Breast Cancer.

Triple-Negative Breast Cancer.

woman shaving her head
Courtesy of Jayne Caron
mom holding an animal
Courtesy of Jayne Caron
husband and wife taking a selfie
Courtesy of Jayne Caron

我现在了解三阴性乳腺癌。我打电话给迈克向他打破新闻,并要求他和孩子们一起住在父母的晚餐。我父亲在呼唤另一条线,当我告诉他在哭泣之间的消息时,我几乎无法呼吸。他和我妈妈不久后出现在我家中,坐下来解释病理报告,并与Google的帮助一致。

To say this has been an emotional journey is an understatement. I’ve been fortunate enough to be surrounded by the most amazing village of friends, family, neighbors, and medical professionals. My husband drove me to every chemotherapy appointment (I had to go in alone thanks to COVID), my friends threw me a boob-voyage party pre-surgery, and my father drove me to daily radiation for 28 days.

woman in the hospital doing radiation
Courtesy of Jayne Caron
手术前的女人
Courtesy of Jayne Caron

我父亲的日常开车充满了一些最精彩的对话和故事,我可能没有机会听到我没有和他在一起的时间。他的看法和观点使我继续前进,在整个斗争中,我最感激的一件事就是增强的关系和我获得的观点。在我们的一辆汽车骑行中,我向父亲哭了,因为很长时间照顾我的孩子是多么困难,而我以为我为他们和我自己做正确的事情所做的所有牺牲。(母乳喂养应该减少您患乳腺癌的机会)。

My dad said something so simple, but I think about it all the time: ‘How do you know it didn’t save you? Maybe things would have been worse if you hadn’t breastfed.’ It was that perspective I needed to dig myself out of sadness. When I started oral chemo, I was dreading the idea of forcing myself to take medicine that would make me feel crummy. My PT suggested that each morning I thank science and the medicine for saving my life. I do this each morning while taking the medication and it has been so helpful.

女人和爸爸一起自拍照
Courtesy of Jayne Caron

I’m very much a dark-humored realist and dislike all the toxic positivity that floats around in the cancer world (encouraged largely by people who have never been in our shoes, who we call ‘cancer muggles’). I do, however, think we can often talk ourselves off the ledge by practicing gratitude and shifting our perspective from time to time, and these lessons have helped me immensely throughout this emotional year. I’ve learned it’s okay to cry, it’s okay to feel all the emotions, but it’s also important to be grateful for those who have been by my side, for the science saving my life, and the small silver linings. To quote one of my favorite songs by Kacey Musgraves, ‘If you’re ever gonna find a silver lining, it’s gotta be a cloudy day.’

妈妈抱着儿子
Courtesy of Jayne Caron

It’s been 10 months since I was diagnosed. I went through eight rounds of aggressive chemotherapy, a double mastectomy with immediate reconstruction, and now oral chemotherapy and radiation simultaneously. It will be a full year before I’ve completed all active treatment and I then hope to look into some trial treatments for TNBC. We hope and pray I will never need treatment again, and in the meantime, I stay vigilant. I urge you to stay vigilant on your breast exams as well.”

mom with cancer with her daughter
Courtesy of Jayne Caron
mom with cancer enjoying her children
Courtesy of Jayne Caron

这个故事提交给beplay网络一直不畅杰恩·卡隆(Jayne Caron)。你可以跟随她的旅程Instagramand herwebsite. Submit your own storyhere,,,,and be sure tosubscribeto our free email newsletter for our best stories, andYouTubefor our best videos.

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